Conference: The Arc’s 2014 National Convention

Date: September 30 – October 2, 2014

Location:

New Orleans Marriott
555 Canal Street
New Orleans, LA 70130

Save the Date:
Join The Arc in New Orleans, Louisiana from September 30 – October 2, 2014 for Convention!

To learn more about the conference, visit the website.

HealthMeet® Webinar: The State of Health and Wellness for Individuals with IDD

The State of Health and Wellness for Individuals with IDD

Time: Wednesday, April 23, 2014, from 2:00pm to 3:00 PM EST

Historically, people with IDD have experienced health disparities related to many different factors including: lack of access to care, inadequate health care providers, and social determinants to name just a few.  Recently though, a greater effort has been made to identify and address such disparities through programs that help encourage healthier lifestyles and educate health professionals.  In this webinar, Lynda Lahti Anderson from the University of Minnesota’s Institute on Community Integration will identify the implications that will hinder future research on these disparities and ways to improve methods of addressing health care needs for this population in efficient, thorough specialized programs and cost-effective methods.

Space is limited. Reserve your seat now for this HealthMeet webinar.

Conference: 2014 Disability Policy Seminar

Date: April 6-9, 2014

Location:

Grand Hyatt Washington
Washington, DC

About the Disability Policy Seminar:
The annual Disability Policy Seminar brings together advocates for people with intellectual and developmental disabilities with public policy experts and the staff of six hosting organizations who serve people with I/DD to go in-depth on pressing policy issues and other topics of importance to the I/DD movement during two full-day sessions in Washington, D.C. The Seminar culminates with a third day spent on Capitol Hill where attendees have the opportunity to meet with their elected officials. Each year approximately 700 people take advantage of this chance to learn, discuss, network and advocate for change. Hosted by: The Arc, United Cerebral Palsy (UCP), Association of University Centers on Disabilities (AUCD), American Association on Intellectual and Developmental Disabilities (AAIDD), National Association of Councils on Developmental Disabilities (NACDD), and Self-Advocates Becoming Empowered (SABE).

To learn more about the seminar, visit the website. Registration is now open.

Autism NOW Webinar: Disability-based Discrimination in Organ Transplantation

Disability-based Discrimination in Organ Transplantation

The registration for this webinar is closed, and it is now only available on-demand.

Time: Wednesday, April 2, 2014, from 2:00 to 3:00 PM EST

Speaker:
Samantha Crane, Director of Public Policy
Autistic Self Advocacy Network

People with intellectual or developmental disabilities face widespread discrimination when seeking potentially lifesaving organ transplantation. This is often due to the perception that people with I/DD would be unable to comply with post-transplant care or have low “quality of life.” In this webinar, Samantha Crane provides an overview of the history of disability-based discrimination in organ transplantation; covers the laws governing disability discrimination in health care contexts; and discusses ways in which people with disabilities, their family members, and other advocates can help ensure that all people have access to lifesaving care.

Webinar Recording and Presentation Slides

View webinar on-demand. 

View PowerPoint slides for this webinar.

HealthMeet® Webinar: Caregivers Role in Maintaining Good Oral Health for Individuals with IDD

Caregivers Role in Maintaining Good Oral Health for Individuals with IDD

Time: Wednesday, March 26, 2014, from 2:00pm to 3:00 PM EST

The challenge for optimal oral health in the special needs population rests in the hands of the caregiver, not with the patient. Studies show that the most significant factor is the caregivers’ ability to take care of their own oral health. This poses the problem of not only assessing oral health status of the patient but also that of the caregiver. Once understood, modifications in daily oral hygiene routines and accommodations for oral care can implemented.

Space is limited. Reserve your seat now for this HealthMeet webinar.

HealthMeet® Webinar: Healthcare Related Issues for Individuals with Disabilities

Healthcare Related Issues for Individuals with Disabilities 

Time: Wednesday, March 12, 2014, from 2:00pm to 3:00 PM EST

This webinar features 2 members from the APHA Disability Section. The purpose of this webinars is to provide an opportunity for students and Disability Section members to share their research throughout the year. The moderator for this session will be Dr. Willi Horner-Johnson.  The first speaker, Lisa Voltolina, will focus on examining the experiences of parents of children with Autism in obtaining a medical diagnosis as many parents report a negative experience consisting of inconsistent information and many barriers with professionals and communication issues. The second half of the webinar will feature Tanya Friese and her research regarding specific standards of care for adults with ID and the relation to hospital-acquired infections to reduce the numbers of infections and improve overall care.

Space is limited. Reserve your seat now for this HealthMeet webinar.

Autism NOW Webinar: It’s 2014! Are There Still Institutions Open in Your State?

It’s 2014! Are There Still Institutions Open in Your State?

The registration for this webinar is closed, and it is now only available on-demand.

Time: Tuesday, February 25, 2014 from 2:00 to 3:00 PM EST

Speakers:

James Tucker, Associate Director, Alabama Disabilities Advocacy Program
Darren Morris, People First of Alabama
Chaqueta Stuckey, Our Voices Count Too, South Carolina
Clint Perrin, Self-Advocacy Association of New York State
Advocates in Action, Rhode Island
Max Barrows and Nicole LeBlanc, Green Mountain Self-Advocates, Vermont

This webinar brings together self-advocates and allies from several of the 13 states in the nation that have closed all institutions. Listen in as speakers discuss lessons learned and what the future holds. Hear how in 2011, Alabama People First worked with allies to become the only state in the entire Southeast to close all institutions. Learn how self-advocates and allies from Advocates For Action are producing a film about the closing of Ladd School in Rhode Island and their current campaign to challenge negative attitudes about people with disabilities. Connect with New Yorkers who are working to eliminate barriers as the Centers for Medicare & Medicaid Services (CMS) emboldens the state to close the remaining doors of their institutions. Register for this important webinar today!

Webinar Recording and Presentation Slides

View webinar on-demand. 

View PowerPoint slides for this webinar.

HealthMeet® Webinar: Identifying and Improving Barriers to Healthcare for Individuals with IDD

Identifying and Improving Barriers to Healthcare for Individuals with IDD

Time: Wednesday, February 12, 2014, from 2:00pm to 3:00 PM EST

Meg Traci, Ph.D., the Project Director of The Montana Disability and Health Program at The University of Montana Rural Institute, will be discussing the current barriers to receiving adequate healthcare.  Dr. Traci will introduce specific issues and show techniques to help resolve those barriers to make healthcare to help increase the number of individuals with IDD who receive healthcare regularly.  These techniques include ways to make facilities more accessible and health forms that are more user-friendly to individuals with IDD.  She will spotlight resources and tools that can be helpful in reviewing current facilities, documents, and programs to ensure they are effective for everyone.

Space is limited. Reserve your seat now for this HealthMeet webinar.

HealthMeet® Webinar: Improving Seizure Outcomes Through Online Seizure Diaries

Improving Seizure Outcomes Through Online Seizure Diaries

Time: Wednesday, January 29, 2014, from 2:00pm to 3:00 PM EST

SeizureTracker.com is an innovative website dedicated to help individuals that have frequent seizures and epilepsy understand the relationship between their seizures, medications/dosages and daily variables to help reduce seizure activity and understand the triggers. Rob Moss, the Co-Founder of SeizureTracker.com, will share some of the tools and personalized reports the system can generate to help empower patients about their medical needs. These reports can then be shared with your doctors to help them better understand and search for answers to your specific situation to improve daily living.

Space is limited. Reserve your seat now for this HealthMeet webinar.

HealthMeet® Webinar: Seizures: Refractory Seizure Evaluation and Treatment in Adults with I/DD

Seizures: Refractory Seizure Evaluation and Treatment in Adults with I/DD

Time: Wednesday, January 22, 2014, from 2:00pm to 3:00 PM EST

Adults with I/DD often have complex and fragile medical difficulties including seizure disorders. Commonly, seizures are refractory to medication therapy and usage of multiple seizure medications, toxicities, ER visits and associated injuries may occur. The presentation will review these various challenges as well as the difficulties that also contribute to problems with diagnosis, testing, and therapies. Recommendations will be made to help ensure that better outcomes are achieved as well as improvements in quality of life.

Space is limited. Reserve your seat now for this HealthMeet webinar.